Social Clips

It can be a bewildering time for a family when a child is diagnosed with muscular dystrophy. There’s a lot to learn, not only about the disease and how it will affect their child but the treatment and care options available, how to deal with the emotional aspect of the disease, how it might…

Non-profit organizations for spinal muscular atrophy (SMA) and muscular dystrophy are reliant on help from people to raise both funds and awareness of the diseases. The money used goes towards research for better treatments, drugs, and understanding of the diseases and to assist patients who have unique needs and…

When Jared Caplin from St. George, Utah, graduated from high school, he didn’t want to go to college—he had other plans. As an ambassador for the Muscular Dystrophy Association (MDA), Jared wanted to continue his work raising awareness of muscular dystrophy. He decided to do that through his YouTube channel…

Having a chronic illness presents many challenges for patients, not only in terms of managing the symptoms they suffer but also having to deal with people’s preconceived ideas about invisible illnesses. MORE: Watch an animated explanation of muscular dystrophy here.  Dr. Amy Stenehjem spent much of her career looking after patients…

Many people who suffer from chronic illnesses also suffer from depression. Depression isn’t something that should be overlooked; it should be brought to your doctor’s attention so that it can be treated. But how do you spot depression?  With help from prevention.com, we’ve put together a list of some of the most common physical signs…

The Boston Red Sox teamed up with the Make-a-Wish-Foundation to surprise eight-year-old Thomas Hastings with a replica baseball field in his backyard. MORE: Firefighters “Fill the Boot” for muscular dystrophy. According to a report on bleacherreport.com, Thomas, who was diagnosed with muscular dystrophy as an infant, wanted a…

The International Association of Firefighters (IFFA) has a long-standing relationship with the Muscular Dystrophy Association (MDA) and has been raising funds for the non-profit organization for more than 60 years. MORE: Boy with Duchenne muscular dystrophy is made an honorary police officer.  Across the U.S., firefighters hold…

  Austin Keihm is a 21-year-old from Hawaii who loves to create art. According to a report on Khon2.com, Keihm’s old high school teacher came up with the idea to use his artwork on T-shirts, and donate the proceeds to the family to help pay for Austin’s medical expenses. MORE: T…

Exondys 51 is a new treatment for Duchenne muscular dystrophy that was granted fast-tracked approval in the U.S. by the FDA in September 2016. Ohio boy to start Exondys 51 treatment for Duchenne muscular dystrophy. Injections of the drug could lessen the impact of muscle weakness and slow progression…

Most of us have probably been reminded to take our vitamins, or pushed to eat something because it’s “full of vitamins”—and it’s true, getting vitamins is incredibly important. Especially during the winter when some people experience Seasonal Affective Disorder, which can be impacted by low levels of vitamin D. But…