You, Me and MD – a Column by Leah Leilani

May 5, 2020April 30, 2020

The Power of Empathy Among Friends

columns, You, Me and MD - a Column by Leah Leilani

I’ve never considered myself to be insecure about my disability. My use of a mobility aid has never dulled my social butterfly persona, except on a few occasions when ... Read more

April 21, 2020April 30, 2020

The ‘Crip Camp’ Utopia Made Us a Better Society Today

columns, You, Me and MD - a Column by Leah Leilani

Netflix’s new documentary “Crip Camp” transports viewers to the peak era of peace-preaching hippies and civil rights activists. But amid these revolutions, another minority group struggled to find belonging: ... Read more

April 7, 2020April 30, 2020

Realizing My Introversion During Self-isolation

columns, You, Me and MD - a Column by Leah Leilani

In the days when I still attended school, I was deemed an extrovert by my teachers and school officials. Never did I falter in putting myself “out there.” I ... Read more

March 17, 2020March 16, 2020

Redefining Success While Living with a Chronic Illness

columns, You, Me and MD - a Column by Leah Leilani

I never have an answer to the questions, “Where do you see yourself in five to 10 years?” or “What are your future goals?” Mitochondrial myopathy is a rare ... Read more

March 10, 2020March 6, 2020

My Favorite Moments at This Year’s LA Abilities Expo

columns, You, Me and MD - a Column by Leah Leilani

On Saturday morning, Feb. 22, I awoke with excited anticipation of the day ahead. That day, I attended the Los Angeles Abilities Expo for the second year in a ... Read more

February 25, 2020February 21, 2020

I Advocate for Disability Rights with Apparel and Accessories

columns, You, Me and MD - a Column by Leah Leilani

Many years ago, I wore a green wristband adorned with the words “energy for life.” This phrase helped me to promote awareness about my disease, mitochondrial myopathy. I wore ... Read more

February 4, 2020February 3, 2020

Difficulties Strengthen Interabled Relationships

columns, You, Me and MD - a Column by Leah Leilani

The best relationships aren’t full of luxurious vacations and daily smiles and laughter. Long-lasting couples have been to hell and back together, growing closer and stronger through the storms. ... Read more

January 21, 2020January 17, 2020

Joining a Support Group Can Make a Difference

columns, You, Me and MD - a Column by Leah Leilani

As a kid, I found it difficult to bond with other children with muscular dystrophy (MD). As a young teen, I often compared myself to others — including those ... Read more

January 14, 2020January 10, 2020

Regaining Control of My Life with The Happy Planner

columns, You, Me and MD - a Column by Leah Leilani

Most people with a chronic illness inevitably learn to expect the unexpected with their health. No matter how meticulously I attempt to plan around my body’s needs, mitochondrial myopathy ... Read more

December 17, 2019December 13, 2019

Gift Ideas for Your Loved One with MD

columns, You, Me and MD - a Column by Leah Leilani

Finding the perfect Christmas gift requires listening intently to the recipient’s wants and needs. This year, the social media team at Muscular Dystrophy News Today asked followers what would ... Read more

Pin It on Pinterest