• Robin

    July 9, 2022 at 6:49 am

    I spend a lot of time in bed due to intense fatigue. I’m sure it’s a combo of my fibromyalgia and OPMD.

  • Sara

    July 12, 2022 at 2:16 pm

    I’ve had Covid the last 2/3 weeks, so I’ve had a lot of fatigue. My mom’s freaking out because she has MD (FSHD) too, and knows what this means for us, but I’ve been able to move around, just not as much as normal and I’m not back to exercising yet. I try to make sure I don’t degenerate any faster than normal even when I’m sick, but it’s a balance where I’m trying to rest and recover too.

    • Leah Leilani

      July 13, 2022 at 3:37 pm

      Sort of the same thing happened with me and my mom. My boyfriend came down with the day after seeing me. I believe I had Covid but didn’t have severe symptoms and then gave it to my mom who suffered the worst and is still extremely fatigued from it.

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