Forum Replies Created

  • Annette Murphy

    Member
    April 12, 2023 at 10:35 am in reply to: Ear, Nose, Throat and MD

    hi there,

    I often have a funny feeling in my ears, nose and throat too.  Find it hard to clear my throat completely.  It feels like food and phlegm is constantly caught in my throat.

     

    Take care all,

    Annette

     

     

  • Annette Murphy

    Member
    April 10, 2023 at 8:52 am in reply to: Loved Ones Questioning Disease Symptoms

    Hi there, I often find people a bit judgemental at times.  They often profess their ignorance by saying things like you are an invalid or you are handicapped a bit hurtful.  Many people often assume I will end in a wheelchair or a popular is assuming I have MS.   Another rather insulting thing is calling persons with Muscular Dystrophy ‘retarded’ or saying everyone one with Duchenne MD is intellectually disabled, which is far from the truth.

     

    I have Limb girdle Md, but was neved told which type and also I was told I that Limb Girdle is a form of Becker MD when I am not make not in a wheelchair.

     

    Happy Easter/Passover, etc,

     

    Seasons Greetings,

    Annette from Ireland.