Forum Replies Created

  • Janee’ Sconiers

    Member
    February 25, 2020 at 12:22 pm in reply to: Bernie Sanders and socialized medicine

    That’s right Ralph. Everyone should have health care in our country.  I’m amazed at how long we have let this go. We live in a wonderful and prosperous country, health care for all is a no brainer.

  • Janee’ Sconiers

    Member
    February 11, 2020 at 10:41 am in reply to: Falls and The Consequences

    Yes. My ankle is not as strong, I can feel this. My brother who has lgmd2l like myself said “to learn to roll with my falls.” I just laughed out loud. I like Pete’s suggestion too.

  • Janee’ Sconiers

    Member
    February 7, 2020 at 10:59 am in reply to: Falls and The Consequences

    I fell in September and broke my fibula. Two weeks prior had bragged about no broken bones in my 57 years. I don’t fall a lot, maybe four or five times, since symptoms reared their ugly heads. This one made up for it. In bed for two weeks, cast then boot. I’m fine now healed on its own, no pins and no surgery. It’s such a weird, unexplainable feeling to have with no warning and your leg collapse. I’m really worried now.  Hope you recover quickly.

  • Janee’ Sconiers

    Member
    February 5, 2020 at 8:34 pm in reply to: How much hope is healthy

    Hi, Leah.  I think not believing and hoping for a cure would be like giving up.  I’ve had ten years of patiently waiting for a diagnosis all the while searching, advocating and making contacts with scientist (I’m beyond doctors) to grab any info. I can find. Saying this I have witness so much progress these years compared to the last twenty or so years. Oh yeah I think believing there will be a cure in my life time is healthy, for myself at least.

  • Janee’ Sconiers

    Member
    January 31, 2020 at 10:15 am in reply to: How much hope is healthy

    Having hope is thinking positive thoughts which, I believe, is a win win emotion for us living with MD. I have LGMD2L every year is worse. I have to believe there’s a cure coming soon. Good question.