Robin
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I spend a lot of time in bed due to intense fatigue. I’m sure it’s a combo of my fibromyalgia and OPMD.
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I was recently diagnosed with oculopharyngeal muscular dystrophy. Although I’ve had some symptoms for years, I never thought they were connected to a disease. I’m struggling a bit to accept this diagnosis and the changes that lay ahead for me. Currently besides the dysphagia and ptosis, my leg muscles are pretty weak.
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I’ve had swallowing issues as well. I’m working with a speech therapist. It’s really hard for my husband watching me eat. He worries about the choking, regurgitation, and the rare occasion I bring everything back up because it just won’t go down.
To be honest, I’m not looking forward to the anticipated progression.
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There’s a loan closet near me also, it’s where I recently got a more stable rollator for using in the house.
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I agree with what you said. For me, I’m happiest when I’m holding my new grandson, he’s so precious!
I always pay a price physically when I visit him, but it’s so worth it!
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Rick, I’ve heard of that. I have my first appt with the local MD clinic in September. Will discuss that then