Advocacy Partner: Parent Project Muscular Dystrophy
About PPMD
Parent Project Muscular Dystrophy fights every single battle necessary to end Duchenne and Becker.
We demand optimal care standards and ensure every family has access to expert healthcare providers, cutting edge therapies, and a community of support. We invest deeply in therapeutic options for this generation of Duchenne and Becker patients and in research that will benefit future generations. Our advocacy efforts have secured hundreds of millions of dollars in funding and won eight FDA approvals.
Everything we do—and everything we have done since our founding in 1994—helps those with Duchenne and Becker live longer, stronger lives. We will not rest until we end Duchenne and Becker for every single person affected.
Contact: Kimberly Galberaith – Principal Creative Director
Phone: 551-449-7099
Email: [email protected]
Upcoming events
Resources
PPMD Together Event Page
PPMD Together meetings across the United States connect families, clinicians, industry partners, and experts to address Duchenne and Becker muscular dystrophy. With new dates and locations continually added, these gatherings create opportunities to share information, build community, and stay informed on the issues that matter most.
Race To End Duchenne Event Page
Experience an extraordinary race weekend—test your endurance, enjoy incredible entertainment, and earn commemorative medals. Ready for more? Take on a multi-race challenge to earn even more. All skill levels welcome—join a fun, spirited running community, uniquely Disney.
PPMD’s Annual Advocacy Conference
Since 1994, Parent Project Muscular Dystrophy has advocated in Washington, D.C., amplifying the voices of families affected by Duchenne. We educate leaders, equip advocates, and advance legislation and policy to drive research, improve care, and ensure Duchenne remains a national priority—working toward treatments and ultimately ending the disease.
PPMD’s Annual Conference
PPMD’s Annual Conference is the largest global gathering of Duchenne and Becker families, uniting our community to share challenges, progress, and hope while Honoring Every Journey. Join us in Texas for an intentionally intimate experience to learn, connect, and hear from experts across research, care, advocacy, and lived experience together.
About Advocacy Partners
The information above is provided by our partner. Learn more about our advocacy partners here.