When your child starts school you may need some help settling in and preparing the school and teachers for meeting your child’s needs. The Muscular Dystrophy Association (MDA) offers a range of educational resources designed to help children with muscular dystrophy and spinal muscular atrophy (SMA) get the most…
https://www.youtube.com/watch?v=KW4WvLd5NqY This video from the World Duchenne Awareness Day shares some of the early symptoms of Duchenne muscular dystrophy. It’s estimated that one in 3500 boys will be born with Duchenne muscular dystrophy but most won’t present any symptoms of the disease until they are two or three years old.
Most three-year-olds only get to watch marathons from the sidelines or on television, but not Levi Gagner. The Rare Disease Report revealed that Levi, along with his dad Kyle, completed the Rock ‘n’ Roll half marathon last weekend. The Pheonix, Arizona event is the third race the two have competed…
https://www.youtube.com/watch?v=AF4D4TyE9NM&t=6s This video from the Duchenne Foundation outlines the clinical progression of Duchenne muscular dystrophy. It explains that for the first few years of a child’s life, there will be no obvious problems, but as the child ages, problems with mobility will start to appear. Find out about the nine main types of muscular dystrophy.
In this 2009 video from the Council for Exceptional Children, 14-year-old Bryan Arnold from Anchorage, Alaska talks about what it’s like living with muscular dystrophy and how important it is to educate other kids about life with a disability. Discover five more inspiring stories about people living…
This Facebook video from Science Nature Page shares a little bit of information about the wearable robot hand that has been designed to help people who have lost function of their hands. Discover three types of exercises suitable for people with slow-developing muscular dystrophy. The device could help people…
Just because you have muscular dystrophy doesn’t mean you can’t live a rich and fulfilling life. Young adults with MD want the same things as young adults without MD: go to college, get a job they enjoy, live independently. However, they may need a little bit of help along the way. We’ve put…
NFL star, Clay Matthews, has lent his support to raising awareness of Duchenne muscular dystrophy (MD). The Green Bay Packers outside linebacker told reporters at the Players’ Tribune that he first became aware of the disease when he was asked to film a promotional video for the Care Duchenne foundation.
https://www.youtube.com/watch?v=wsASIV_fiMo In this video from Michelle Durante, we see demonstrations of exercises designed to help muscular dystrophy patients. Michelle talks about some of the types of muscular dystrophy and how adapted exercises can help slow the progression of the disease. Find out more about the nine different types…
Lisa and Amy Howe are 19-year-old twins who live in Auckland, New Zealand. But while they may look alike and share many of the same characteristics, there is one main difference between the two. At the age of 14, Lisa was diagnosed with a form of muscular dystrophy which affects…
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