Columns

Medicare’s Role for People with Disabilities

On May 1, I became eligible for Medicare. This is one of those milestones in life. I was able to access this benefit a few years early because of my muscular dystrophy. I am now on Social Security Disability Insurance (SSDI). The way it works is that after…

Learning to Accept My Mental Illness Through Creativity

Positivity is a characteristic that I naturally possess. I seldom struggle to find the bright side of situations. Although this attribute has saved me innumerous times from acquiring a negative disposition, I have not been completely unscathed by depression and anxiety.  My mental illness began early…

What I’ve Learned from Starting a Twitch Channel

When I started my Twitch channel in February, I wasn’t sure what to expect. I became quite familiar with the video game streaming platform through journalism, and finally worked up the courage to start. In the four months since then, I’ve learned about starting a small business, branding, design,…

Let’s Aim to Achieve True Global Accessibility

On May 21, the world celebrated its ninth Global Accessibility Awareness Day, but accessibility awareness hasn’t yet risen to its deserved level of interest. The awareness day website shares a great picture of this initiative’s potential scale: there are about a billion people with visual, hearing, motor, or cognitive…

Why Self-monitoring Our Functioning Levels Is Important

The muscular dystrophy world is ever-evolving. I began to have symptoms of muscle loss and weakness in 2006. Science had not yet discovered my form of the illness, limb-girdle muscular dystrophy subtype 2L (LGMD2L). My physician, a member of the Muscular Dystrophy Association, told me they would find…

The Power of Empathy Among Friends

I’ve never considered myself to be insecure about my disability. My use of a mobility aid has never dulled my social butterfly persona, except on a few occasions when I’ve communed with other people with disabilities and had to face the reality of my own disease. …

The Impossibility of Putting a Value on a Life

Author’s note: The COVID-19 crisis has already lasted several months. The reality is that we don’t know how this will go. But as a community, my opinion is that we need to be ready. We need to be knowledgeable. This column will focus on some work we have done to…

The ‘Crip Camp’ Utopia Made Us a Better Society Today

Netflix’s new documentary “Crip Camp” transports viewers to the peak era of peace-preaching hippies and civil rights activists. But amid these revolutions, another minority group struggled to find belonging: the disability community. To further their cause, Camp Jened’s hippie staff dedicated themselves to treating people with disabilities…