Columns

Overcoming the Idea of Being a Burden

As I’ve started relying more on people for things I used to do on my own, it’s become easier to ask for help without feeling like a burden. This toxic thought has been a challenging mental hurdle, but it’s one we all deserve to get over. With compassion,…

The Battle Against Ableism Is Tiring, but I Won’t Give Up

A few unfortunate circumstances recently have left me mentally exhausted by the endless recurrence of ableism. It feels as though ableism lurks around every corner, waiting for the opportune moment to rain on my sunshiny parade. Arming myself with an advocate seems necessary for braving the outside…

Why It’s Important to Be Still Amid the World’s Chaos

The world can be overwhelming thanks to the deadly coronavirus pandemic, especially for someone dealing with muscular dystrophy. On top of the daily struggles — lack of mobility, physical exhaustion, and steroid-related side effects — there’s also the worry of getting sick and feeling the virus’s financial…

Losing My Ability to Walk Won’t Stop Me

When I was younger, I couldn’t imagine losing my ability to get up from the ground, run, or play soccer. Now I can’t imagine losing my ability to walk.  At 23, I’m still able to walk despite having Duchenne muscular dystrophy, and I’m incredibly thankful for…

The Angels Who’ve Profoundly Affected My Life

Living with a disability often means I’m exposed to people’s true colors. This can be both positive and negative. My disease has familiarized me with the cold shoulders of family members and the condescension of doctors, but it has also strengthened my gratitude for the people in my…

A Day on the Hill: Using Our Voices to Lobby Lawmakers

Columnist’s Note: Dear reader, this will be my final column at Muscular Dystrophy News. The past 15 months have been wonderful, but I have decided to take time away from writing to work on a variety of things, including the LGMD2L Foundation. Next year will bring us many opportunities…

Being Independent Within My Capabilities

I often associate independence with adulthood and coming-of-age. The liberation of a teenager learning to drive a car or a student bidding farewell to their childhood home as they are whisked off to college are just a few things that come to mind. I think of these things…