Having Duchenne muscular dystrophy is scary for a number of reasons. High up on that list is experiencing a fall. That’s especially true for those who have been on steroids for many years. Our bones aren’t as strong because of it. For those of us in a transition…
The holidays are notorious for being one of the most hectic times of the year. People jump at the opportunity to score the best deals, and they sprint to grab the last toy on the shelf. Each year, as my mom decorates the Christmas tree…
I always hope to impart a positive message to my readers and exude joy in life whenever possible, but I also know it’s OK to be upset, even angry, at times. I have to face the peaks and valleys the same as anyone else, but I also have…
Technology is an essential tool I use both in my social life and to be more productive at work. While it can make certain things I struggle with easier, it also has its ups and downs, just like everything in life. My daytime hours are spent staring at…
If 2020 hasn’t been a challenging year for you, that’s great news. But for me, like many others, this year has been a lesson in overcoming adversity, whether it’s due to sheltering in place from COVID-19, losing a job, or facing a mental…
Those of us with invisible chronic illnesses master the art of mindfulness for our bodies. Since our symptoms show little signs of existence, we must work hard to translate our body’s hidden language of fatigue. Neglecting this skill could impede receiving the medical help we so desperately need.
On Sept. 29, part of my life was lost. My dog, Gus, who had been a staple of the Miller family household for 13 years, left the world. To where, we can only guess, but he left parts of his odd personality with us and gave us memories we will…
I have clear memories of listening to my fourth-grade friends talk about what their “boyfriends” got them for Valentine’s Day, or whispering between one another during class about who liked whom. My hope of one day having a stereotypical teenage romance carried into high school, but dwindled as…
As a journalist and person with Duchenne muscular dystrophy, I have a dual purpose. I want to inform people and hold those in power accountable. I also want to show that having a disability doesn’t detract from my career goals. U.S. National Disability Employment…
Over the last couple of years, I’ve had opportunities to meet and befriend more adults with Duchenne muscular dystrophy. Whether we’ve found one another through CureDuchenne events or a common love for video games, my network within the…
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