My oldest son, Max, was diagnosed with Duchenne muscular dystrophy (DMD) on July 10, 2010. During the following year, my sons Rowen and Charlie were also diagnosed with DMD. In a few days, it will be the 12th anniversary of Max’s diagnosis. But for me, July 10 serves…
This week’s column is a little different than usual. Hawken Miller, a fellow Muscular Dystrophy News columnist who has Duchenne muscular dystrophy (DMD), reached out to collaborate. Hawken, who’s also a features writer for Bionews, the parent company of this website, asked me five questions about being the parent…
Some days do not want to be good ones. We had one of those days this past Sunday. I was determined to get to church on time. From the get-go, many factors were working against me. For one, my husband wasn’t home. My son without Duchenne, Chance, is playing…
The seasons are all special to me and necessary to one another. Each holds its own challenges and wonder. Here in Nebraska, we are fortunate enough to experience all four — winter, spring, summer, and fall. Every time I enter a new season, I think it’s my favorite, but by…
Motherhood was not something I was always sure I wanted. The idea of motherhood scared me. I didn’t think I had what it took. When I think of the word mother, I think of love — and I feared I didn’t have enough to give. That changed the moment I…
New places, new people, new things: They’re exciting! As a parent, I encourage my children to try new things, step outside their comfort zones, and see what the world has to offer. There is no difference in how I parent my children with Duchenne muscular dystrophy (DMD) and my…
I drive a massive, commercial-size, accessible, 12-passenger Dodge Promaster van with a high roof. And I love it for many reasons. Our van was never — and is not now — my dream car. But just like Duchenne muscular dystrophy (DMD), it is something I have learned to…
Summer! The best time of year for my kids. We are currently counting down the days left of school. In Nebraska, school is out for summer break by the middle of May. So next week, all my children will be on summer break! My kids will spend plenty of…
I had one of those moments that hit you hard with a dose of the future last week. And those hits hurt. I was pushing my baby daughter, Callie, in her stroller. We were on a walk to the middle school my son Rowen attends. I happily thought about it…
I write my columns on Tuesdays. I do this because I procrastinate. My deadline is Wednesday morning, and I’m not about to wake up early on Wednesdays to get it done. I am not a morning person, but I’m too old and have too many kids to stay up late…
Get regular updates to your inbox.