30 Days of MD: Writing as Coping Mechanism
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30 Days of MD: Writing as Coping Mechanism
National LGMD Conference Builds the MD Community
This past weekend, I had the opportunity to take part in a very special conference in Chicago. I’d had the honor of seeing this event grow from the idea stage; the first planning meetings were over a year and a half ago. This was a watershed moment, as…
MDA Awards $6.6M to 25 Scientists Working in DMD, Other Neuromuscular Diseases
Twenty-five research grants totaling more than $6.6 million have been awarded by the Muscular Dystrophy Association  (MDA) to support studies into the mechanisms of neuromuscular diseases, including Duchenne and other muscular dystrophies. The funding will allow researchers not only to investigate the causes of neuromuscular diseases, but also to…
September 11, 2019
by Danielle "Dani" Liptak
Day 11 of 30 Days of MD: Fashion Designer with LGMD
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My Asthma Flare Inspired Me to Buy a Vogmask
For most of my life, I’ve suffered from viral-induced asthma. While coughing and wheezing are often a constant with standard asthma, viral-induced asthma is triggered by infections such as the common cold or the flu. My first asthma memory was during my first-grade year. I missed a month of…
September 10, 2019
by Ralph Yaniz
30 Days of MD: Faith, Disability and Advocacy
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Regular Checkups Can Help You Stay Well for as Long as Possible
Life can get hectic sometimes, especially when you are dealing with a rare disease such as Duchenne muscular dystrophy. However, you shouldn’t let your busy schedule prevent you from making regular visits to your primary care physician or neurologist. At routine appointments, your doctors can track your…
BBP-418 in Development to Treat LGMD Type 2I, with Natural History Study to Start Soon
BBP-418, an oral treatment candidate for patients with limb-girdle muscular dystrophy type 2I (LGMD2I), is being developed by ML Bio Solutions, a new subsidiary of BridgeBio Pharma, the company has announced. BridgeBio intends to start a natural history study by…
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