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July 11, 2019July 9, 2019

The Speak Foundation Speaks Loudly: A Prelude to September in Chicago

columns, Living, Learning, Thriving - a Column by Ralph Yaniz

I recently attended The Speak Foundation’s 11th Annual Conference. This event is for individuals with neuromuscular diseases and their families. We met in the beautiful city of Atlanta, for ... Read more

July 8, 2019July 2, 2019

Here’s How I Explain My Experience with Duchenne to Others

columns, Hawk's-Eye View - a Column by Hawken Miller

Duchenne muscular dystrophy is not easy for people to wrap their heads around. Most haven’t heard of the disease, which is rare and affects about 1.02 males ages 5 ... Read more

July 1, 2019June 27, 2019

You Can Experience the Beauty of the Outdoors, Even with Duchenne

columns, Hawk's-Eye View - a Column by Hawken Miller

It’s hard to find time to spend outside, especially since I have a disease that hampers my mobility, but being outdoors reinvigorates and reboots me, and reconnects me to ... Read more

June 25, 2019June 25, 2019

Book Review: ‘Strangers Assume My Girlfriend Is My Nurse’

columns, You, Me and MD - a Column by Leah Leilani

Spoiler alert: This column contains stories from the book “Strangers Assume My Girlfriend Is My Nurse,” by Shane Burcaw. It was during one of my late night YouTube browsing ... Read more

June 24, 2019June 20, 2019

Moving into a New Life with Duchenne

columns, Hawk's-Eye View - a Column by Hawken Miller

I recently started my internship at The Washington Post in Washington, D.C. Getting to this point was a culmination of blood, sweat, and tears throughout all levels of education, ... Read more

June 20, 2019June 18, 2019

Choosing an E-bike: Some Things to Consider

columns, Living, Learning, Thriving - a Column by Ralph Yaniz

This column is a particularly nice one for me to write because of my love of bicycle riding. I began to bike in 1988. I was 29 years old ... Read more

June 18, 2019June 17, 2019

The Battle Between Mitochondrial Myopathy and Makeup

columns, You, Me and MD - a Column by Leah Leilani

My early years in this world were spent being a girlie girl. Along with my stash of crowns and fake pearls were things like brightly colored nail polish and ... Read more

June 17, 2019June 13, 2019

Expressing Myself on YouTube with a Disability

columns, Hawk's-Eye View - a Column by Hawken Miller

Watching YouTube videos allows me to simultaneously learn something new, laugh out loud, and connect with the gaming community. I never thought I could start a YouTube channel on ... Read more

June 13, 2019June 10, 2019

It’s Essential to Be Your Own Health Advocate

columns, Living, Learning, Thriving - a Column by Ralph Yaniz

Last week’s column, “Uniting to Effect Positive Change,” focused on the bigger picture of advocacy. This form of advocating is about a larger movement and changing the society we ... Read more

June 10, 2019June 6, 2019

Scheduling Out Life Makes Living with a Disability Easier

columns, Hawk's-Eye View - a Column by Hawken Miller

Combining medical appointments with school, work, and finances can sometimes overwhelm me. My mom used to be the keeper of my schedule, but now it’s all up to me, ... Read more