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Rest Was Key for My COVID-19 Recovery With Duchenne MD

Two weeks ago, I tested positive for COVID-19, which can be especially dangerous for people with Duchenne muscular dystrophy. My lungs aren’t as strong as other people’s lungs, and taking a corticosteroid for nearly 20 years has weakened my immune system. But after consulting with my excellent…

Sometimes I’m Not Successful as a DMD Caregiver

“We are called upon not to be successful, but to be faithful.” This quote, which has been passed down in many forms, is one of my favorites from Mother Teresa. I’ve been thinking a lot about life with Duchenne muscular dystrophy (DMD). We’re going to our neuromuscular clinic…

Legos Remind Me of Our Family’s Legacy of Love

When you have kids’ Legos in the house, you tend to have Legos everywhere! At least, that’s how it’s always been here with my “Party of 9.” My oldest son and second child, Max, 16, got us started with the building bricks over a decade ago. Growing up,…