Living, Learning, Thriving – a Column by Ralph Yaniz

July 30, 2020July 28, 2020

A Day on the Hill: Using Our Voices to Lobby Lawmakers

columns, Living, Learning, Thriving - a Column by Ralph Yaniz

Columnist’s Note: Dear reader, this will be my final column at Muscular Dystrophy News. The past 15 months have been wonderful, but I have decided to take time away ... Read more

June 25, 2020June 23, 2020

Looking Backward but Living Life Forward With MD

columns, Living, Learning, Thriving - a Column by Ralph Yaniz

“Life can only be understood backwards; but it must be lived forwards,” said philosopher Søren Kierkegaard. He came up with an existential masterpiece. In a dozen words, Kierkegaard captured ... Read more

June 11, 2020June 9, 2020

Medicare’s Role for People with Disabilities

columns, Living, Learning, Thriving - a Column by Ralph Yaniz

On May 1, I became eligible for Medicare. This is one of those milestones in life. I was able to access this benefit a few years early because of ... Read more

May 28, 2020May 28, 2020

Let’s Aim to Achieve True Global Accessibility

columns, Living, Learning, Thriving - a Column by Ralph Yaniz

On May 21, the world celebrated its ninth Global Accessibility Awareness Day, but accessibility awareness hasn’t yet risen to its deserved level of interest. The awareness day website shares ... Read more

May 14, 2020May 12, 2020

Why Self-monitoring Our Functioning Levels Is Important

columns, Living, Learning, Thriving - a Column by Ralph Yaniz

The muscular dystrophy world is ever-evolving. I began to have symptoms of muscle loss and weakness in 2006. Science had not yet discovered my form of the illness, limb-girdle ... Read more

April 30, 2020April 29, 2020

The Impossibility of Putting a Value on a Life

columns, Living, Learning, Thriving - a Column by Ralph Yaniz

Author’s note: The COVID-19 crisis has already lasted several months. The reality is that we don’t know how this will go. But as a community, my opinion is that ... Read more

April 16, 2020April 14, 2020

Living, Learning, Thriving When We Need It Most

columns, Living, Learning, Thriving - a Column by Ralph Yaniz

None of us have lived through something like what we are going through today. Some have attempted to equate it with other historical events. But there is a uniqueness ... Read more

March 26, 2020March 24, 2020

The Muscular Dystrophy Community Counts on Accessibility Improvements

columns, Living, Learning, Thriving - a Column by Ralph Yaniz

I feel strange not writing about the pandemic crisis in this column, but we’re already bombarded with information about it, and it appears we will deal with these issues ... Read more

March 12, 2020March 10, 2020

One Year Later: Catch Me if You Can

columns, Living, Learning, Thriving - a Column by Ralph Yaniz

March 1 was my one-year anniversary with BioNews Services, the publisher of Muscular Dystrophy News. Defining a period in this manner allows me to see how far I’ve come ... Read more

February 27, 2020February 25, 2020

On Rare Disease Day, Let’s Dare to Be Rare

columns, Living, Learning, Thriving - a Column by Ralph Yaniz

In the coming days, a great deal of focus will be placed on Rare Disease Day, which is Feb. 29. And for good reason. Approximately 7,000 rare diseases affect ... Read more

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