Father-daughter Duo Double Up to Find FSHD, Rare Disease Cures
When his daughter, Meredith Huml, was diagnosed — finally — with facioscapulohumeral (FSHD) muscular dystrophy in 2004, Raymond Huml immediately jumped into action, researching everything he could about the disease and reaching out to the FSHD Society. “We went to the FSHD Society and looked up what they…