The first patient has been dosed in a Phase 2 clinical trial of ACE-083 as a treatment for the muscle impairment in Charcot-Marie-Tooth disease, according to the therapy’s developer, Acceleron Pharma. Acceleron is already evaluating ACE-083 in another Phase 2 trial — this one as a treatment for facioscapulohumeral muscular…
Medical marijuana is gaining popularity as a complementary medicine to help with many symptoms associated with chronic illnesses. While many people are curious about how marijuana (or cannabis) may help improve their symptoms, they are also reluctant to smoke the substance. However, there are ways that medical marijuana can be administered, including…
In this video from Gawker, Rich Juzwiak talks to comedian Steve Way to find out how having muscular dystrophy affects his life and how it impacts his comedy. MORE:Â Cyclists ride from Seattle to New York for facioscapulohumeral muscular dystrophy Way talks about the misconceptions…
People are always surprised at how faithful my family is. They think that because of my illness we would automatically throw our faith out the window, or that we would blame God for our circumstances. It’s quite the opposite actually. Growing up, I wouldn’t exactly say we were a family of…
Continuing an 11-year tradition, the Muscular Dystrophy Association (MDA) will once again team up with Casey’s General Stores in Iowa to help send children with muscular dystrophy (MD) and related diseases away for a week of fun and friendship to MDA Summer Camp at no cost to their families. During…
Duchenne muscular dystrophy (DMD) is a genetic disease that causes muscles to progressively weaken. The condition affects mainly boys and the onset of symptoms usually occurs between the ages of two and three and according to the Mayo Clinic, the following are the most common symptoms that present…
Jiffy Lube and the Muscular Dystrophy Association (MDA) are teaming up again this summer for the 6th annual MUSCLE UP! campaign. Each August for the past five years, Jiffy Lube has campaigned in support of MDA-funded muscular dystrophy and related neuromuscular disease research and programs to help…
An epic coast-to-coast bike ride in aid of facioscapulohumeral muscular dystrophy (FSHD) reached its conclusion last week. Beginning back in May, the bike ride started in Seattle, Washington and finished at the Barclay’s Center in Brooklyn, New York, taking in 15 different states along the way and 54 days to complete.
A recent study has found that wearing hand braces while sleeping may help boys with Duchenne muscular dystrophy retain some of their muscle function. MORE: Watch what happens when children meet a man with muscular dystrophy. The small clinical trial had eight boys with the condition who had impaired wrist extension…
Researchers at the University of Missouri have developed a new method to efficiently deliver the correct form of dystrophin gene to muscles as a way to correct the faulty gene that characterizes Duchenne muscular dystrophy (DMD), a mouse study shows. Their study, “A Five-Repeat Micro-Dystrophin Gene Ameliorated Dystrophic…
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