Actor, comedian, and MDA Telethon host Jerry Lewis died of natural causes on Sunday, August 20 at his home in Las Vegas. MORE: Watch what happens when children meet a man with muscular dystrophy As well as enjoying a glittering career in Hollywood, often as part of a double act…
Synergy HomeCare and the nonprofit Muscular Dystrophy Association (MDA) have teamed up in a national partnership to improve quality of life and give more independence to people with neuromuscular disorders. The accord aims to develop a new care guide for newly diagnosed patients and their primary caregivers. The guide will offer…
In 1965, a coach for the University of Florida football team — the Gators — noticed that his players were being affected by heat-related illnesses. The coach then asked a team of physicians to determine the exact cause for his players falling ill. The physicians discovered that the team was…
Many patients with Charcot-Marie-Tooth (CMT) disease, a subtype of muscular dystrophy, undergo surgeries to correct foot deformities. Yet a new study finds that surgeons vary significantly in their choice of procedures for the same operation. The study, “Prevalence and orthopedic management of foot and ankle deformities in Charcot Marie Tooth disease,”…
In this video from Muscular Dystrophy UK, Dr. Ros Quinlivan from the Queen’s Square Centre for Neuromuscular Diseases in London talks about healthcare for people living with congenital muscular dystrophy. MORE: Four treatment areas for muscular dystrophy Dr. Quinlivan explains that CMD covers a wide range…
Capricor Therapeutics recently shared an update of the company’s quarterly financial results and operational highlights, including positive results for the ongoing HOPE study with Duchenne muscular dystrophy (DMD) patients. The Phase I/II HOPE study (NCT02485938) is assessing the safety and tolerability of investigational…
The American Heart Association (AHA) has awarded its distinguished Scientist Development Grant to a University at Albany researcher for the development of new therapies to treat Duchenne muscular dystrophy (DMD). Bijan K. Dey, PhD, is a faculty researcher at the university’s RNA Institute and is working on a class of…
Cardiff University scientists, partnering with the biotech company PerkinElmer, have developed a diagnostic kit to screen for Duchenne muscular dystrophy (DMD) in newborns using dried blood spots, according to researchers. The study, “Characterization of a Blood Spot Creatine Kinase Skeletal Muscle Isoform Immunoassay for High-Throughput Newborn Screening of Duchenne…
The investigational therapy MA-0211, also called MTB-1, a potential treatment for Duchenne Muscular Dystrophy (DMD), was approved for a Phase I clinical trial, developer Mitobridge announced. The trial will evaluate the therapy’s safety and tolerability and determine its pharmacokinetics and pharmacodynamics profile, or its behavior in the body and mechanism…
These videos show how people living with muscular dystrophy (MD) can smash the stereotypes associated with having a disability, and lead rich and full lives. First up is 35-year-old Michael Klinkhamer, who has Becker muscular dystrophy. In this video shared by Story Hive, Michael explains that he spends all of…
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