I’ve had bad posture my entire life. Growing up, I didn’t know why I always slouched so much.
Leah Leilani
Leah is a Southern California-based patient writer. She’s been an active member of the muscular dystrophy community since her regional ambassadorship with the MDA beginning at the age of 10 after her diagnosis of a rare neuromuscular disease, mitochondrial myopathy (Mito). Leah advocates for those with disabilities and promotes an understanding of her condition by evoking a positive outlook upon the obstacles she faces. Leah’s work doesn’t just stop at her column: she also doubles as a co-moderator on the MD News Forums. Away from her jobs, Leah is known among family and friends for her artistic creativity and outgoing personality.
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Articles by Leah Leilani
For the first couple years of having mitochondrial myopathy, I used a manual wheelchair to get around. But…
Growing Thicker Skin
It’s inevitable that people will treat you different when you’re in a wheelchair, whether that works in your…
As you may know, the influenza virus has been very intense this season, resulting in many hospitalizations…
If you’re like me and have been closely monitored by a cardiologist for one reason or another (mine…
Creating a Good Support System
A good support system is crucial to getting through the endless roller coaster that is life, whether or…
It can be tough to know how to stay organized for doctor’s appointments. It’s virtually impossible without the…
17 Things I Learned in 2017
Well, everyone, it is officially 2018! A new year means new beginnings, new opportunities and more chances to…
When people ask me what my favorite season is I always say winter. I find that it’s much…
How to Maintain Your Hobbies
I’ve been drawing and sketching ever since I could pick up a marker. For me, drawing isn’t…