Leah Leilani Hello! My name is Leah, and 12 years ago, I was diagnosed with a rare form of muscular dystrophy called mitochondrial myopathy. If you don’t know, mitochondria are the energy machines of the cell. They transform your food into energy so you can live. When…
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Recent Posts
- First Duchenne patient receives novel gene-editing therapy in trial
- Working hard on staying positive as my FSHD progresses
- FDA decision on DMD cell therapy pushed to November
- Maintaining ankle range of motion with muscular dystrophy
- A busy week ends with a baby shower, a stomach bug, and a lesson learned