ralph
Forum Replies Created
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I have occasionally seen this. More often I see places where there aren’t enough spaces. But when I’ve seen someone in these spots I usually get angry and drive on. Maybe I need to come up with a better way – make up some notes to leave by car. Or take a picture and send to local authorities. I’d love to hear other ideas.
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Heartburn is something I’ve had since age 10. Long before MD symptoms. Also runs back generations in my family so I don’t think for me it’s related to MD. If I take just two Prilosec a week that right there eliminates it. Tums is good, too. But I definitely find when I eat less that helps.
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I haven’t and that might help. I’ll have to look those up. I’d like to use my Mac more but iPad has been easiest to use so far. But the pas is a good idea!
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My Cuban/Lebanese grandmother always said (in Spanish), step by step you can reach the ends of the earth.” It helped me to realize that you can reach every goal a little at a time, setting many goals as you approach your final success. 💪🏽
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I use a lot of voice recognition, but it makes so many errors that sometimes going back and fixing is just as difficult. I wish they could make something better because I would rather write something by speaking and then make some edits to finalize. I also find it less difficult to type on an iPad screen than to use a laptop where I have to hold hands/arms higher.
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Funny because just last night I had a zoom call at 7pm. I went into our second bedroom and closed the door. My doggie proceeded to sit outside the door whining. I let him in. He just sat on hardwood floor at my feat for the hour. 😊
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Love this column by Hawkin. I have written several columns about living creatively. Those of us with disabilities are master at this. This creative living is essential. While I focused more on purely creative living to overcome physical obstacles, Hawkin takes this a step further to the realm of mindful creativity. Great!
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😊🙏🏽
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I definitely like harder to softer. If it’s too soft, like you I have trouble moving around. I have one now that’s similar to purple you mention. I only have a little trouble sitting on edges. But once on it is soft but still solid. Nice.
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Just looking forward to being outside! 😊💪🏽
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Thanks! 🙏🏽
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In early May I was able to do a face to face for my six-month assessment in the prednisone clinical trial I’m in. I also did one tele session with a neurologist. In July I have a face to face appointment with my new primary. My hope is no falls that I need ER for. Let’s all stay safe!
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I could be wrong but I thought it was more an issue of eating rather than brushing. I know for me one side is definitely used more and therefore there is more normal wearing out of teeth. And I know I have a tendency definitely to chew more with one side of my mouth.
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Great! Glad you’re both back! Our fearless leaders 💪🏽
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Woohoo good to see you all back 😊
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I agree this will be difficult and most everyone I know will not be jumping into normal activity. I think back to January to mid March when this virus must have been incubating and then exploded as people began to get sick. It took two to three months of no sporting events or business travel or conferences. No Disney or Vegas. No bars and pubs and restaurants. No concerts. No movies or theaters. Etc. to get us to this lull. So I fear that if June-August we incubate again it could get difficult in sept and oct. I think the only thing that may temper that is that the majority of people, unlike January to March, will be cautious and wear masks.
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As a matter of fact, today. I need to go back for the six month post-testing for a clinical research study I’m in. It will mean about four hours of testing. MRI, bone scan, blood work, strength testing, walking test, etc. I’ll be in a mask and in an area of the hospital that’s been shut down for a couple months but it’s a big hospital complex that’s handled big numbers of Covid cases.
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I was not aware of this book but I’ll be delving into it. Sounds like great stuff.
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This is good, and very important. I founded the LGMD2L Foundation and we maintain a registry. But we haven’t reached this level yet. I would love to look for partnerships to do something like this.
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I try to break it up. I might do a little stationary bike to get my legs going. Or sometimes I do small walking increments in my condo. Maybe walk 500 steps in some circles. Rest. Repeat. I also have some small dumbbells that I can do some lips with my shoulders and arms.
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I’m doing ok and my column out in a couple hou te talks about how I’m living, learning and thriving during this pandemic. I hope we are a step closer each day but we need to plan for some weeks and possible months of this still ahead. Hope you are all well and safe.
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People are unique. We all bring different life experiences to our decisions. People with disabilities are not one size fits all. We are as unique as everyone else. I lived 47 years without symptoms of my MD. If I had a choice I’d say yes, let’s go back to my functioning prior to MD. But I can say that in some ways I’m living my best life now. Let’s continue to live, learn and thrive!
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Interesting column and I will offer some similar ideas in terms of opportunities during this time. I truly believe that so many of us with disabilities and physical limitations have gone through some of what society at large is going through today with how we are living in the bubble of social isolation.
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Thank you, and I just learned it will be a week from tomorrow!